Project Manager - Swiss Register for Rare Diseases

UniBE is ambitious. With us, you deliver top performance and measure yourself against the best. Project Manager - Swiss Register for Rare Diseases Start date or by arrangement Employment relationship fixed-term Institute / Place of work [Institut für Sozial- und Präventivmedizin (ISPM)](< >) About us The Institut für Sozial- und Präventivmedizin (ISPM) at the University of Bern is active in research, services, and teaching in public health, clinical epidemiology, biostatistics, and international environmental health. In Switzerland, an estimated half a million people live with a rare disease. Nevertheless, to date, nationally available data on diagnoses, disease progression, therapies, and the needs of those affected are lacking. Exactly this information is crucial to improve care and to advance research in a targeted manner. This is where the Swiss Register for Rare Diseases begins. Under the leadership of Prof. Dr. med. Claudia Kuehni, a dedicated register team works together with hospitals, patient organizations, Orphanet Schweiz, and kosek to build this data foundation. The register creates important foundations for care and research. In the future, it should enable studies and make it easier for those affected to participate in research projects. Tasks and responsibility * Manage the SRSK operationally and develop it further together with the register management * Bring amendments for the ethics committees and consortium agreements with university and cantonal hospitals to completion * Further develop the coordination of project logistics in cooperation with university and cantonal hospitals (data collection, modality of data transfer, SOPs, data quality assurance) * Further develop the database in close cooperation with IT specialists * Develop strategies for sustainable financing, manage finances * Expand exchange with federal offices, university and cantonal hospitals, and patient organizations * Conduct public relations (congresses, annual reports, webpage, etc.) * In the medium term, participate in research projects that build on the register data Profile requirements * University degree in medicine, epidemiology, public health, life science or related fields * Several years of experience in project management in healthcare, clinical research, or the register sector * Knowledge of regulatory requirements in research (Humanforschungsgesetz, data protection) * Experience in some of the following areas: ethics applications, agreements, reports, project applications, and scientific publications; databases, data collection and data analysis * Strong communication skills and enjoyment of exchange with doctors, authorities and patients * Business fluent German and English; French skills are an advantage * Structured, independent and solution-oriented way of working as well as enjoyment of appreciative cooperation in a team * Willingness to take responsibility and actively advance the register Your benefits Exciting activity in a dynamic team closely networked with research and services Healthy corporate culture and good working atmosphere Team-oriented working Central location in the heart of Bern Working at UniBE The University of Bern offers not only exciting tasks, but also an environment that actively promotes development, diversity and equal opportunities. Discover what distinguishes us as an employer and how you can progress with us. Application and contact Please send your application by to Natalie Studer Questions about the position? Cheryl von Arx Questions about the application? Natalie Studer j4id10449988jm j4it1043jm j4iy26jm